August 2012 TTC

  1. You have chosen to ignore posts from luckinlife. Show luckinlife's posts

    Re: August 2012 TTC

    Great news Stefani!

     
  2. You have chosen to ignore posts from WhirledPeasPlease. Show WhirledPeasPlease's posts

    Re: August 2012 TTC

    Quiet on here, huh? 

    I got my test results back from last week. After my and DH's collective googling, I'm pretty convinced that I have PCOS. Apparently my LH:FSH ratio indicates PCOS--and increases my chances for repeated miscarriage. DH was reading about implications of ovarian failure, Sawyer's disease, and other terrible things, but I think PCOS is much more likely because I have other symptoms of it too. The only confusing thing is that PCOS is linked with obesity and I've always been very small. 

    I'm waiting for my doctor to call me back about the RE referral. I'm really starting to freak out about all of this--one of the treatments for PCOS is BC. How is that helpful?--and when I read about how my test results implicate repeated miscarriage, I just lost it. Can I get a refund on all of the apparently unnecessary birth control I took for the past ten years?
     
  3. You have chosen to ignore posts from siena09. Show siena09's posts

    Re: August 2012 TTC

    WPP--Sorry about the test results!  Have you talked to your doctor about them?  Seems like that would be helpful.  Also if it's been a week and no one has contacted you about the referral, I'd be reaching out to the office again to make sure that happens.  

    Many women with PCOS have healthy pregnancies.  I wouldn't worry too much about m/c now if you can avoid it--it's really cart before the horse at this point, and hopefully you will never have to worry about it!

    Another way to think about this is that you are making progress with your doctors at narrowing in on what they can do to help you get pregnant.  The TTC process is taxing, but there's no way around it.  Even with PCOS, some women get pregnant without intervention, so trying is an important first step to being able to figure out if intervention might help and if so which interventions.  I hope you are able to get in with a good RE soon.

    AFM, kicking off the 2ww again.  Anyone with me?  

     
  4. You have chosen to ignore posts from luckinlife. Show luckinlife's posts

    Re: August 2012 TTC

    WWP - Based on the labs you had sent, I don't see how you can jump to repeated miscarriage.  Typically it is clotting tests (anticardiolipin, antiphospholipid antibody) that really lead down that path.
    PCO is a diagnosis that does not even require blood tests (but usually they are done). 
    1) irregular periods
    2) signs of excess androgen (male hormone excess) - acne, hair growth or lab values such as elevated DHEA or testosterone.

    Oddly, polycystic ovaries is NOT necessary to make the diagnosis.  Often obesity and glucose intolerance is associated as well.

    Birth control helps in part by decreasing androgen excess so helps with acne, hair growth.

    What was your FSH? 
    Honestly, these values can be difficult to interpret so I really would avoid the internet if possible.
     
  5. You have chosen to ignore posts from IPWBride. Show IPWBride's posts

    Re: August 2012 TTC

    WWP - are you using a Patient Gateway, or another such site from your doctor to get your test results?  It sounds like you got results before seeing your doctor.  I have done this too, as I am able to log in to get results before getting the phone call from my doctor.  With my last M/C, it was helpful, but also drove me totally crazy.  Heck I even started googling about my iron levels and what they could mean since I had access to them.  We all do it, so don't feel bad about it, but stop googling!!!  At least until you talk to your doctor next.  Its so wonderful to have so much info at our fingertips but also can really screw up our brains and cause way too much worry.  After my m/c, they ran a bunch of tests, one of which was to see if I had fragile x syndrome (not just because of my one m/c, but since my FSH is so off the charts for my age).  Well, after googling, I was ready to put my son in special care because if I had it, he would have had it and my head was such a mess.  At the end of the day, I don't have it, and chances are, you may not have PCOS.  And as others have said, if you do, learn about it from your doctor and how s/he goes forward with it, rather than the internet.  It will save you a ton of worry!
    SO much easier said than done, I know.  When is your next appointment with your doctor?  Either your new PCP or perhaps the new RE?  

    Good luck Siena! Fingers crossed for you!!  I'm expecting AF this week sometime, and lets just say, I think our best window for BD involved some 4play that unfortunately was a little too effective :-)  So I have no doubt AF will arrive!
     
  6. You have chosen to ignore posts from SSBride09. Show SSBride09's posts

    Re: August 2012 TTC

    WWP - I'm sorry that those test results are causing you such stress right now and hope your next appointment with the RE is soon.  If not, can you call?  Ditto to IPW's comments... stop using google as a diagnostic tool!  It only leads to more stress which never helps.

    Siena - Good luck in the 2ww!  Wish I were there and its weird but I actually kind of miss the whole waiting and hoping phase.  With the bcps I was put on and weeks of shots it has been and will be a while.  In fact, I just had a "suppression check" yesterday to make sure I was totally supressed of all hormones which seems so counterintuitive as a step towards getting pregnant.

    So got a call after my ultrasound and bloodwork yesterday and I'm clear to start the stimulating drugs.  I start tomorrow and then go back again for another ultrasound and more bloodwork Monday.  At least that does seem like a step in the right direction so I'm excited.

    They can't tell me for sure by estimated egg retrieval is Aug 29th, so I won't be in 2ww until early Sept.
     
  7. You have chosen to ignore posts from siena09. Show siena09's posts

    Re: August 2012 TTC

    SSBride--I didn't realize how long IVF cycles were... this process requires so much patience!  I'm glad things are going well so far, and I'll keep my fingers crossed for some good news in mid-September.
     
  8. You have chosen to ignore posts from Chiclet831. Show Chiclet831's posts

    Re: August 2012 TTC

    WPP - Sorry to hear about your potential PCOS diagnosis. I hope your doctor has some good suggestions for you. I completely agree with getting a refund for all the unnecessary birth control. I'd like a refund check from Nuvaring and Durex myself! Smile I thought, and I could be wrong, that the miscarriage risk with PCOS is due to low progesterone and that can easily be supplemented during the beginning of your pregnancy.

    My appointment with my new RE is scheduled for Friday (if my records from my current RE come in time). I did the phone interview last week and got a great vibe from the nurse I spoke to. I'm about as excited as a person seeing an RE could be for this appointment. I don't know if the outcome will be any different, but I feel like this practice will take care of me. Thank you again to everyone who pushed me to seek a second opinion and to IPW for the recommendation!

    Good luck Siena and IPW on the 2ww. SS, I'm happy your IVF cycle is going well so far!

     
  9. You have chosen to ignore posts from Daisy75. Show Daisy75's posts

    Re: August 2012 TTC

    WPP--I have PCOS.  Other than the obstacles to getting pregnant, it's really not that big of a deal.  One important thing to know is that if you keep your weight down, that can help with the symptoms.  The main issue is that women with PCOS tend to gain weight more easily than others and have more difficulty taking it off.  It's all related to insulin affecting other hormones and signalling in your body.  Also, it's a SYNDROME which means that it doesn't present the same way in every person:  some people have a lot of symptoms, some barely have any and many are in the middle range.

    My symptoms are irregular to non-existent periods, cyst-covered ovaries (even I could tell on ultrasound before the tech pointed it out), a bit more hair than one would want in places where there really shouldn't be any, ridiculous difficulty losing weight, and gaining weight just by thinking about food.  But I have a nice thick head of hair whereas some women with PCOS have trouble with thinning hair on their head...so it could be worse. :) 

    The first thing you should do is get these two books: 

    http://www.amazon.com/Patients-Guide-PCOS-Understanding---Reversing--Polycystic/dp/0805078282/ref=sr_1_1?ie=UTF8&qid=1345042812&sr=8-1&keywords=understanding+pcos

    http://www.amazon.com/PCOS-Diet-Plan-Approach-Polycystic/dp/158761023X/ref=sr_1_1?s=books&ie=UTF8&qid=1345042848&sr=1-1&keywords=pcos+diet

    The first one explains PCOS and the second one is written by a nutritionist at Boston IVF who specializes in PCOS.  Her contention is that diet plays a big role in making PCOS better or worse--which makes sense b/c of the way insulin is involved.

    As far as miscarriages go, I had a chemical pregnancy in 2007.  After a few months w/out a period and a lack of concern by the nurses in my gyn's office (my gyn was out on medical leave), I switched to another gyn but the nurse in his office told me to go to Boston IVF first.  The RE I saw was wonderful.  I brought in my chart (the same one I'd been using for ~4 months b/c I hadn't had a period since the m/c), he asked some questions and did an exam and told me he was pretty sure I had PCOS but he had to rule out thyroid.  Once he ruled that out, he thoroughly discussed my options and we went from there.  He put me on metformin and after an HSG and a couple other things, I took clomid and got pregnant with twins on the 3rd cycle.

    REs have a lot of tricks for dealing with PCOS and having PCOS doesn't mean YOU are going to have repeated miscarriages--it just means that you have a higher risk of them than someone who doesn't have PCOS.  There's a big difference. 

    Once you have an official diagnosis and talk to the RE, you'll know your options and you can decide what, if anything, you're willing to do to increase the odds of getting pregnant.  The good thing about the diagnosis is that you don't have to wait a year for insurance to cover infertility treatment--you have an underlying condition that makes it difficult for  you to get pregnant w/out assistance, so insurance will cover it right away.  (I know you've been dealing with this a long time, but at least now you can DO something and not have to wait any longer).

    As others have said, stop googling.  Get those books or similar books.  Go to the RE and ask lots of questions.  I think once you educate yourself from reliable sources, it will help. 

    If you insist on looking online for info, an online resource that I haven't used but I see recommended frequently is www.soulcysters.com so that's probably a better starting point than Google.  :)

    Good luck.  Don't be discouraged and definitely don't panic.  This is manageable and you will probably be able to have a normal, healthy pregnancy...you just have to jump through a few more hoops first.
     
  10. You have chosen to ignore posts from WhirledPeasPlease. Show WhirledPeasPlease's posts

    Re: August 2012 TTC

    Thanks, everyone...Yeah, I need to step away from the internet. I definitely started panicking, maybe for no reason. IPW, I do have an online access to test results (I shouldn't look at that anymore either!). 

    LIL, my FSH was 8.14 and FSH 18.67. I'm going to forbid DH from googling too because he found all of that info about ratios and miscarriage, etc. It seems strange that PCOS is named for the polycystic ovaries but that they're not necessarily diagnostic!

    Daisy, thanks for sharing your experiences and I did pick up those books recently; I'm about half way through them! I'm check out that non-crazy web site you posted too. :) 

    Good luck in the 2ww, siena and IPW. SS, good luck with your tests! 
     
  11. You have chosen to ignore posts from stefani2. Show stefani2's posts

    Re: August 2012 TTC

    WPP - i'm echo-ing daisy, but i have PCOS too (well, i don't believe it, but the RE told me i did.  he said i did b/c i had irregular periods and some weird FH/FSH thing going on (or maybe it was cysts? don't remember).  my point is i DON'T have excessive male hormones, lots of hair, or a weight problem (um - well, now i do after my twins but that's not a syndrome's fault LOL!)).  i got PG with twins on clomid and didn't have a MC.  i remember being worried about the "repeated MC" warnings too, so just wanted to let you know you could very well have a healthy PG once you get PG.  keep us posted and good luck.

    chiclet - GL with your appt.  SS - GL w/ the treatments.  siena - GL with the 2ww!  IPW... my imagination's running wild!  ;)  did i miss anyone?  :)
     
  12. You have chosen to ignore posts from IPWBride. Show IPWBride's posts

    Re: August 2012 TTC

    Stef - did you have your u/s this week?  Hope all is well.  AF came yesterday.  I have the option of going in and the RE will do some kind of HSG like procedure (but more to check the lining of my uterus post m/c, according to them) and they said they'd do a mock transfer (no idea what that is) if we want to move forward with IVF.  Man this is so tough.  I really go back and forth.  I think DH and I need to decide tonight - we going to try once or just let it go?  Its not now or never, but they told me to call with my next AF to make the appointment since it needs to be between CD5-10 (last time I got AF right before vacation so couldn't do it last month).  One of my good friends just got PG with her 5th (maybe even more) IVF cycle, after trying for 3 years for their #2.  I'm so happy for her, but am still so confused about what is right for me.  Aghhhhh.... 
     
  13. You have chosen to ignore posts from kargiver. Show kargiver's posts

    Re: August 2012 TTC

    Her 5th? I can't relate to wanting a baby THAT much, but that's great they finally got a pregnancy out of all that, and I hope it works out the way they are envisioning and hoping it will. Best to you IPW as you figure out what you and DH want to do. And, to everyone having a difficult month...or year as some have experienced. AFM, I'm expecting AF any second, feeling super bloated and crampy (and had a migraine yesterday, argh), and hope I get it before Sunday so I can drink with abandon at my SIL's BBQ. :) I've essentially given up on getting pregnant, again, the hope that the m/c gave us 3 years ago of our being able to get pregnant has worn off. So, of course, that probably means I'm pregnant right now, lol.
     
  14. You have chosen to ignore posts from luckinlife. Show luckinlife's posts

    Re: August 2012 TTC

    Kar - how about 8 IUIs and 5 IVFs and then a total of 4 donor cycles. Do I win a prize? (Actually, I would say yes with DD #1 and 2)  HAHA

    Good luck to you IPW.  I did not find the cycles to be too difficult but I know going through with it can be a tough decision.
     
  15. You have chosen to ignore posts from Chiclet831. Show Chiclet831's posts

    Re: August 2012 TTC

    I just have to vent for a second.

    I got my medical records from my first (current?) RE yesterday, so of course I tore the envelope open and started reading. Would you believe that he had me do fasting bloodwork on Day 3 AND NEVER TESTED MY GLUCOSE?!? Despite that I brought him an ultrasound that showed polycystic ovaries? I feel like I got completely cheated out of a proper diagnosis. I just don't get why he wouldn't test everything he could. I was so mad! So mad!

    IPW - Good luck with whatever you choose!
     
  16. You have chosen to ignore posts from siena09. Show siena09's posts

    Re: August 2012 TTC

    IPW--Sorry AF came. :(  Good luck with your decision.  

    LIL--that sounds like it was a long path. i'll give you a prize for that!  it still makes me angry thinking about how random this all is--how easy for some, how challenging for others.  I get that life's not fair, but it sometimes still boggles my mind.

    Chiclet--sorry about the frustration with the past RE.  I hope you have a much better experience with the new doctor soon!
     
  17. You have chosen to ignore posts from kargiver. Show kargiver's posts

    Re: August 2012 TTC

    Omg, lil, you DO get the prize - like you say, your babies!!
     
  18. You have chosen to ignore posts from luckinlife. Show luckinlife's posts

    Re: August 2012 TTC

    chiclet - The glucose is not part of the diagnosis of PCO but it is associated with PCO.  It doesn't make the diagnosis.  It should be done at some point in the future but can easily be done at any point in your cycle.
     
  19. You have chosen to ignore posts from SSBride09. Show SSBride09's posts

    Re: August 2012 TTC

    Chicklet - I'm sorry that's so frustrating.  Hoping the next RE works out better for you.

    Luck - That is quite the journey!  You definitely deserve your little girls after all that!  I'm confident in saying I would do the same.  Yes, it a tiresome and sometimes frustrating process.  But no matter how many cycles it takes me, if I get the chance to hold my baby in my arms I think I'll look back on it all as a series of minor inconveniences to getting there.  I'm sure its well worth it!

    Started my stimming drugs yesterday.  It was kind of scary to do this shot since the pen/cartridge thing they gave me was a bit confusing, but not too bad overall.  Now I keep going with my two shots/night until my next ultrasound and bloodwork visit Monday when they'll let me know if still progressing like they want.
     
  20. You have chosen to ignore posts from luckinlife. Show luckinlife's posts

    Re: August 2012 TTC

    SS - Agreed.  Worth every minute in my eyes.  Good luck over the next couple of days.  I think you are doing IVF not IUI.  I was so worried about the egg retrievals and ended up actually enjoying those days.  (I liked the anesthesia and having to be home from work and relaxing all day - I never take days like that otherwise).
     
  21. You have chosen to ignore posts from WhirledPeasPlease. Show WhirledPeasPlease's posts

    Re: August 2012 TTC

    Wow, luck, that's a epic adventure! I'm glad it all worked out for you. 

    IPW, what did you decide to do?

    Good luck with your shots, SS. 

    Sorry about your frustration, chiclet. Are they treating you for the PCOS?

    I made my appt with the fertility specialist for Sept. 12 (it took some finangling because they first offered me something in November!). DH is going too and they're mailing us a questionnaire to fill out before we go in. DH is pretty shy, so I told him to prepare for some very personal questions! I'm looking forward to this appt; I feel like we're finally on the road to a destination. 
     
  22. You have chosen to ignore posts from IPWBride. Show IPWBride's posts

    Re: August 2012 TTC

    WPP - yay.  Sept 12th is not that far away!  That is great, and I remember that questionnaire.  Good luck filling it out!

    I made the appointment to see the RE again next week.  They are going to check my lining and as it turns out, a mock transfer is just taking measurements so they know what size caths to use (or something like that).  And DH is going to go Wed for his 2nd SA (he needs two irregular SAs for our insurance to cover our IVF with ICSI, which apparently we need).  So we are giving ourselves the option to go forward.  Even though we are not full out trying, I was definitely bummed with AF's appearance, and I think it means more to me than I was letting myself believe.  Although... SS, I'm following your protocol with such great interest.  Is it me, or does it seem really long and really involved??  It seems like so much?!  I want to be sure I fully understand what we'd be signing up for.
     
  23. You have chosen to ignore posts from SSBride09. Show SSBride09's posts

    Re: August 2012 TTC

    lil- You're right I'm doing IVF with ICSI. 

    WPP - It literally feels like the other day I was filling out that questionnaire (in June), and at the same time sometimes it feels like the process is taking forever.  Hope the time to Sept 12th flies  by for you.

    IPW - I'm on the long lupron protocol which I think is the most common to start on at least from what I've read.  The example calendar below is pretty much it except what made it much longer is that I had to do a full 21 days of bcps before starting on this cycle so that made it a 2 month process overall.

    http://www.advancedfertility.com/sampleivfcalendar.htm
     
  24. You have chosen to ignore posts from SSBride09. Show SSBride09's posts

    Re: August 2012 TTC

    IPW - I should add that it seems long and involved, but I wouldn't think twice about going for it if the only reason is the ivf process.  If you look at it from the perspective of one day at a time its just a couple of annoying minutes each day for the shots, which are not very painful (most of the needles are the same size as those used by people who do insulin shots every day their whole lives).

    I was also pleasantly surprised that my last ultrasound and bloodwork visit only took 20 minutes.  I even made it to work on time that morning. 

    So... I'm sure I'll be complaining about something tomorrow but overall I think the hardest part of the process is just emotional.  The hoping and waiting and not knowing whether everything your doing is going to work.
     
  25. You have chosen to ignore posts from SSBride09. Show SSBride09's posts

    Re: August 2012 TTC

    Looks like this process may actually move faster than I expected.  Had a scan & stab this morning and my largest follicle was already at a 17 (I think its common to trigger at 20) so may be on the stimulating drugs a lot less time than I thought.

    I'm so bummed though that the tech only saw 6 measurable follicles on the ultrasound.  So chances are I won't get a ton of eggs to work with so just have to hope they are good ones.
     
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