Re: August 2012 TTC
posted at 8/15/2012 11:16 AM EDT
WPP--I have PCOS. Other than the obstacles to getting pregnant, it's really not that big of a deal. One important thing to know is that if you keep your weight down, that can help with the symptoms. The main issue is that women with PCOS tend to gain weight more easily than others and have more difficulty taking it off. It's all related to insulin affecting other hormones and signalling in your body. Also, it's a SYNDROME which means that it doesn't present the same way in every person: some people have a lot of symptoms, some barely have any and many are in the middle range.
My symptoms are irregular to non-existent periods, cyst-covered ovaries (even I could tell on ultrasound before the tech pointed it out), a bit more hair than one would want in places where there really shouldn't be any, ridiculous difficulty losing weight, and gaining weight just by thinking about food. But I have a nice thick head of hair whereas some women with PCOS have trouble with thinning hair on their head...so it could be worse. :)
The first thing you should do is get these two books: http://www.amazon.com/Patients-Guide-PCOS-Understanding---Reversing--Polycystic/dp/0805078282/ref=sr_1_1?ie=UTF8&qid=1345042812&sr=8-1&keywords=understanding+pcoshttp://www.amazon.com/PCOS-Diet-Plan-Approach-Polycystic/dp/158761023X/ref=sr_1_1?s=books&ie=UTF8&qid=1345042848&sr=1-1&keywords=pcos+diet
The first one explains PCOS and the second one is written by a nutritionist at Boston IVF who specializes in PCOS. Her contention is that diet plays a big role in making PCOS better or worse--which makes sense b/c of the way insulin is involved.
As far as miscarriages go, I had a chemical pregnancy in 2007. After a few months w/out a period and a lack of concern by the nurses in my gyn's office (my gyn was out on medical leave), I switched to another gyn but the nurse in his office told me to go to Boston IVF first. The RE I saw was wonderful. I brought in my chart (the same one I'd been using for ~4 months b/c I hadn't had a period since the m/c), he asked some questions and did an exam and told me he was pretty sure I had PCOS but he had to rule out thyroid. Once he ruled that out, he thoroughly discussed my options and we went from there. He put me on metformin and after an HSG and a couple other things, I took clomid and got pregnant with twins on the 3rd cycle.
REs have a lot of tricks for dealing with PCOS and having PCOS doesn't mean YOU are going to have repeated miscarriages--it just means that you have a higher risk of them than someone who doesn't have PCOS. There's a big difference.
Once you have an official diagnosis and talk to the RE, you'll know your options and you can decide what, if anything, you're willing to do to increase the odds of getting pregnant. The good thing about the diagnosis is that you don't have to wait a year for insurance to cover infertility treatment--you have an underlying condition that makes it difficult for you to get pregnant w/out assistance, so insurance will cover it right away. (I know you've been dealing with this a long time, but at least now you can DO something and not have to wait any longer).
As others have said, stop googling. Get those books or similar books. Go to the RE and ask lots of questions. I think once you educate yourself from reliable sources, it will help.
If you insist on looking online for info, an online resource that I haven't used but I see recommended frequently is www.soulcysters.com
so that's probably a better starting point than Google. :)
Good luck. Don't be discouraged and definitely don't panic. This is manageable and you will probably be able to have a normal, healthy pregnancy...you just have to jump through a few more hoops first.