April 10, 2009

Autism Awareness: Resources that can help

Kent and Angie Potter's oldest son, Sam, was born prematurely, and from the very beginning they had a swirl of doctors and specialists around them, helping them navigate the world of preemie development. So when Sam started exhibiting severe developmental delays (above and beyond the ones most preemies have), they had people to turn to for advice.

FULL ENTRY

Posted by: Lylah M. Alphonse at 05:41 AM | Link | Comments (5) | Email

tags ASD, autism, autism awareness, autismspot, child caring, diagnosis, parenting, PDD, PDD-NOS, resources, spectrum

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5 comments so far...

Please visit http://fearlessfemales.blogspot.com/ , a terrific blog about raising children with autism. My friend Holly Nappi, an amazing mom of two children with autism, shares her personal experiences and offers helpful information for everyone. Holly has a wonderful writing style and offers an interesting perspective as a parent. She blogs daily about an awareness and acceptance of autism, backing it up with stories, sometimes funny, sometimes touching, always engaging. You will enjoy reading her thoughts -- there is always something there for everyone to learn.

Posted by Christine Carlson April 10, 09 09:15 AM

http://fcsn.org Federation for Children with Special Needs.
Here is a great resource for families in Massachusetts. They can help with anything from finding more information from Autism and MA laws on special education and Autism.
http://www.autismconsortium.org Autism Consortium
Is for families in New England that help you find services, providers and facilities in New England.
Autism Speaks
Autism Society of America
National Autism Association
This is just to name a few more and they have some great links to hook you up to other resources.

Posted by AC April 10, 09 09:40 AM

Thank you for posting the interview and story about Autismspot.com. I am the proud grandfather of Sam. This website is truly a blessing for the parents, grandparents, siblings and friends that have a loved one that has been diagnosed with Autism.

Posted by Richard East April 10, 09 12:30 PM

Parents of autistic kids are often on the spectrum themselves, and parents often find out they are autistic, or are part of the broader phenotype, for the first time when a child is diagnosed. Therefore, parents' own experiences will be of use to their child, perhaps as much as any professional's!

Posted by Stephanie April 10, 09 01:50 PM

By the way, if your child is having some issues as early as 6 months old, please do get in touch with your local Early Intervention Group (there is one in Stoneham, MA) and Building Blocks (Danvers, MA).

These folks are great with the kids, and very knowlegeable.

If anyone else needs to have a shoulder to vent on, I'm a good one.

Posted by Gia Saulnier April 15, 09 01:31 PM

DO NOT HIT THE SUBMIT BUTTON MORE THAN ONCE!

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about the authors

Lylah M. Alphonse is a member of the Boston Globe Magazine staff and mom and stepmom to five kids ranging in age from toddler to teen. In addition to writing for Child Caring, she also writes about juggling a full-time career and parenthood at The 36-Hour Day, and about everything else at Write. Edit. Repeat. When she's not glued to the computer or solving a kid-related crisis, she's in the kitchen or, occasionally, asleep.
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Barbara F. Meltz is a freelance writer, parenting consultant and author of "Put Yourself in Their Shoes; Understanding How Your Children See the World." A former Globe staff writer, she wrote the weekly "Child Caring" column for 19 years. That column earned her many awards, including the 2008 American Psychological Association Print Excellence award. Barbara is available as a speaker for parent groups.
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